Director of Communications and Marketing

Director Of Communications And Marketing Elevate Awareness, Drive Impact

Location : Peabody, MA, (Hybrid) | Full-Time

Salary : $100,000-$125,000

Reports To : Executive Director

Join the Mission to Cure Progeria

The Progeria Research Foundation (PRF) is the only nonprofit in the world solely focused on discovering treatments and a cure for Hutchinson-Gilford Progeria Syndromea rare, fatal pediatric disease that accelerates aging in children. Founded by Drs. Leslie Gordon and Scott Berns after their son Sam's diagnosis, PRF has turned what was once an unknown disease into one of the most visible rare disease movements in the world. From securing an FDA-approved treatment to producing an Emmy-winning HBO documentary and one of the most-viewed TEDx Talks of all time, PRF has built a powerful global brand on a small but mighty team.

Your Role : Elevate the Brand, Drive Engagement, Fuel Fundraising

We're looking for a Director of Communications & Marketing who can lead PRF into its next chapter of visibility, reach, and donor engagement. This is a mission-critical role : your work will not only raise awarenessit will directly amplify scientific breakthroughs and support families around the world. You'll own the strategy and execution of all external communications, media relations, content, digital marketing, and storytelling initiatives. Working closely with leadership, development, and program teams, you'll help transform PRF's communications into a fundraising and awareness growth engine.

What You'll Own

• Set Strategy & Shape the Brand Conduct a full audit of PRF's communications and marketing channels. Define clear priorities to raise awareness and accelerate fundraising outcomes. Establish PRF's voice across platforms, audiences, and channels.
• Build Campaigns That Drive Action Develop integrated campaigns that support major fundraising milestones, donor stewardship, and awareness goals. Collaborate with Development to align messaging with giving strategies.
• Lead Media & Public Relations Pitch PRF stories and thought leadership to top-tier media outlets. Manage relationships with reporters, producers, and communications partners.
• Own Digital & Social Presence Oversee PRF's website, social media, and email marketing channels. Build content calendars and analyze performance to guide future content.
• Craft High-Impact Content Write compelling press releases, newsletters, appeals, blog posts, and donor materials. Translate complex science into clear, emotional, mission-driven stories.
• Strengthen Family Engagement Oversee PRF's family-facing platform, Progeria Connect, creating content that supports and uplifts affected families globally.
• Guide Crisis & Sensitive Communications Handle communications with care, empathy, and precision in sensitive situations involving families, the Board, or the media.
• Embrace Data & Innovation Use metrics and analytics to refine strategies. Responsibly experiment with AI tools to enhance efficiency and reach.

What We're Looking For

Why PRF?

You'll be part of a mission-driven team of 14, backed by an engaged board, leading researchers, and generous donors. Your work will shape the narrative of one of the most inspiring movements in rare disease research. Every project you lead could extend lives, support families, and bring us closer to a cure.

This is more than a communications role. It's a chance to lead messaging for a life-saving missionand help write the next chapter in one of medicine's most remarkable stories.