Director, Patient Advocacy

Join to apply for the Director, Patient Advocacy role at Zevra Therapeutics

Join to apply for the Director, Patient Advocacy role at Zevra Therapeutics

Get AI-powered advice on this job and more exclusive features.

About Zevra Therapeutics, Inc.

We are a rare disease therapeutics company leading with science to make life-changing therapeutics available to patients with significant unmet needs. We involve key thought leaders, physicians, patients, care partners, and advocacy groups in all of our clinical and regulatory development strategies.

About Zevra Therapeutics, Inc.

We are a rare disease therapeutics company leading with science to make life-changing therapeutics available to patients with significant unmet needs. We involve key thought leaders, physicians, patients, care partners, and advocacy groups in all of our clinical and regulatory development strategies.

With a keen understanding that drug development often requires creative solutions, we have the insight and expertise to forge new pathways to success that others have missed. By following the data without bias, our transparent narratives and common-sense perspective have successfully overcome complex development challenges to make much-needed therapies available to patients.

Nimble and dauntless, we push boundaries beyond what is thought to be possible and advance new therapies that have the potential to bring meaningful improvement to patients’ lives.

About The Role

The Director, Global Patient Advocacy, will work in close collaboration with relevant stakeholders including medical affairs, commercial, regulatory and clinical development to define the company’s patient advocacy priorities and oversee advocacy strategies and collaborations that educate and activate patients.

Direct patient advocacy relationships and interactions across the portfolio disease states including NPC, UCD, and lead advocacy plan execution. Cultivate successful relationships with global patient advocacy organizations and create and execute education and awareness strategies. Serve as an internal subject matter expert on issues relating to patient advocacy. The position is based on-site in Boston, MA .

What You'll Do

• Ensure deep understanding of supported disease areas and patient needs to inform our work across the organization
• Create and execute a strategic and tactical advocacy plan and corresponding budget
• Successfully engage rare disease advocates, building trust and long-term relationships
• Establish and maintain key relationships with advocacy organizations to drive initiatives for collaboration and education. Share information on company activities and interests with advocacy organizations as appropriate
• Collaborate with key internal teams (marketing, regulatory, market access, clinical and business development, medical affairs, corporate communications) on advocacy issues and support their need for patient engagement and insights
• Develop and manage the advocacy sponsorship budget and process for patient advocacy grant requests
• Attend and represent Zevra at key advocacy meetings
• Identify key strategic company representation and advocacy activities at patient conferences and meetings
• Build a patient centric culture
• Work on site Monday - Thursday

Qualifications

Equal Employment Opportunity Statement

Zevra is an equal opportunity employer that is committed to diversity and inclusion in the workplace. We prohibit discrimination and harassment of any kind based on race, color, sex, religion, sexual orientation, national origin, disability, genetic information, pregnancy, or any other protected characteristic as outlined by federal, state, or local laws.

Notice to External Recruiters

Zevra does not accept unsolicited resumes from agencies or search firms. Recruiters are requested not to contact employees or hiring managers. All candidate submissions must be coordinated through our Human Resources team and require a prior written agreement. Any resumes sent without such an agreement will not create any implied obligation.

Seniority level

Seniority level

Director

Employment type

Employment type

Full-time

Job function

Job function

Other

Referrals increase your chances of interviewing at Zevra Therapeutics by 2x

Get notified about new Director of Advocacy jobs in Boston, MA .

Waltham, MA $225,000.00-$290,000.00 3 weeks ago

Sr. Director, Patient Advocacy and Engagement

Chief, Curatorial Affairs and Conservation

Boston, MA $240,000.00-$280,000.00 2 months ago

Associate Director, Communications & Advocacy Relations

Cambridge, MA $160,000.00-$190,000.00 1 week ago

Director of Government Relations &City Partnerships

Boston, MA $140,000.00-$360,000.00 2 weeks ago

Associate Director, Public Affairs & Policy

Director / Senior Director, Corporate Communications & Investor Relations

Associate Director, IBD Strategy & Engagements Marketing

Lexington, MA $153,600.00-$241,340.00 4 days ago

Boston, MA $110,000.00-$115,000.00 1 month ago

Director of Government Relations &City Partnerships

Associate Director, IBD Strategy & Engagements Marketing

Lexington, MA $153,600.00-$241,340.00 3 weeks ago

ASSISTANT DIRECTOR, MARKETING & COMMUNICATIONS, School of Social Work, Administration

Associate Director, IBD Strategy & Engagements Marketing

Lexington, MA $153,600.00-$241,340.00 3 weeks ago

Associate Director, Global Health Economics Lead, Oncology Business Unit

Boston, MA $153,600.00-$241,340.00 3 weeks ago

Senior Director Dermatology, Global Medical Affairs

Senior Director Dermatology, Global Medical Affairs

Boston, MA $250,000.00-$320,000.00 3 days ago

Director, US Procurement Digitalization and Operations

Associate Director, Global Health Economics Lead, Oncology Business Unit

Boston, MA $153,600.00-$241,340.00 2 weeks ago

We’re unlocking community knowledge in a new way. Experts add insights directly into each article, started with the help of AI.

#J-18808-Ljbffr